Disease Education Advocacy Groups
CancerCare® is the leading national organization dedicated to providing free, professional support services including counseling, support groups, educational workshops, publications and financial assistance to anyone affected by cancer. All CancerCare services are provided by oncology social workers and world-leading cancer experts.
The Leukemia & Lymphoma
Society (LLS) is the world's
largest voluntary nonprofit
health organization dedicated
to developing better outcomes
for blood cancer patients,
research, providing critical
support, education, and
resources to patients and their
MPN Advocacy & Education International provides educational programs, materials and resources for patients, caregivers, physicians and entire healthcare teams to improve their understanding of myelofibrosis, polycythemia vera, and essential thrombocythemia. We are dedicated to making a difference in the lives of those affected by MPNs and strive to grow awareness and advocate on behalf of the MPN community.
Founded by patients for patients, the MPN Research Foundation is a catalyst for research funding in pursuit of new treatments – and eventually a cure – for myeloproliferative neoplasms (MPNs). We are dedicated to helping you change your prognosis by serving as a valuable source of education and resources in the MPN community.
The National Organization for Rare Disorders (NORD) is the leading independent advocacy organization representing all patients and families affected by rare diseases. NORD is committed to the identification, treatment and cure of the more than 7,000 rare diseases, of which approximately 90% are still without an FDA-approved treatment or therapy. Rare diseases affect 25-30 million Americans. More than half of those affected are children.
Patient Power is the leading producer of video interviews with medical experts and inspiring patients for people affected by cancer. Patient Power provides online and in-person events, produced in association with major patient organizations, medical centers, and clinics, and has won the trust of patients worldwide, offering expert perspective on complex health issues and providing knowledge, confidence and hope.